レディーガガさんの線維筋痛症「見えない痛み」

クラファンコミュニティ コ・クラウドファンディングの中尾です。

 

ご存知の方も多いと思いますが、あのレディーガガさんは線維筋痛症という病気であることを公表しました。

 

そして、コミュニティメンバーにも、レディーガガさんと同じ、線維筋痛症という病気と闘う方がいます。

 

如月まぁやさんです。

 

彼女が、日刊ゲンダイさんの取材を受けた時にこのように話しています。

 

顔面以外、全部痛いです。形容しがたいですが、いつも血管にガラスの破片が流れているような感じです。痛みが引いているときでも正座で足がしびれているような感じが全身にあって、酷い時は体の中からカチ割られるような痛みがあります。

引用・日刊ゲンダイより

 

見た目には普通の人となんら変わりがなく見えるため「見えない痛み」という言葉を使われていました。

 

見た目にはわからないため、ほんとにいろいろな苦労をされているとのことで、17歳から患う「線維筋痛症」の啓蒙のため、音楽活動や講演活動を行っています。

 

如月まぁやさんは5歳からピアノを始め、18歳で音楽専門学校に入学。作曲を専攻し、卒業制作でCDアルバム「FantasiaMusical」を仲間と共に制作。その中の1曲が「Pain」として配信されています。

 

僕は個人的に「Relief」の方が好きなので、こちらの曲を紹介しますw

 

また、ブログやTwitterも精力的に投稿されているので、ぜひご覧になってください。

 

「如月まぁや」で、検索いただくといろいろなサイトなど出てきます。

 

また、いま如月まぁやさんは

 

【急募】
あなたが「あまり知られていないな」とか「みんなに誤解されてるな」と思う病気を教えて頂けませんか?

どんな病気があってどんなことに困っているのか勉強したいです!

病名だけでもお願いします。

頂いた情報を元に後日みなさんにも共有したいと思います。

facebookで、このような投稿もされていますので、協力いただければと思います。

https://m.youtube.com/watch?v=Rf6l13hAuas


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